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The PERSEVERE Study
Last updated on April 11, 2025.
Sarah Mitchell Chen LCSW, APHSW-C, Rush Medical Center
May 22 @ 1:30 pm – 2:30 pm MDT
PERSEVERE is a national study funded by the National Institutes of Health, led by Dr. Jori Fleisher at Rush University Medical, which is testing an educational program for family caregivers of people with Parkinson’s Disease who are experiencing changes in memory & thinking. PERSEVERE will test whether a disease-specific, caregiver-centered educational intervention improves caregiver knowledge, confidence, strain, and health outcomes – and whether it helps people living with Parkinson’s Disease, too.
Family caregivers will receive weekly educational guidance through a 12-week curriculum with resources and activities. All participation is virtual and scheduled when it works for you. There are no in-person visits and the person with Parkinson’s does not participate—just caregivers. Caregivers fill out online surveys and assessments at baseline and every two weeks throughout their involvement in the study, including a six-month follow-up period after the 12-week curriculum.
Interested in learning more? Visit https://redcap.link/PERSEVERE1 to watch a video providing more information about the study and hear testimonials from prior PERSEVERE study participants. Or visit the social media pages for the study like to follow along and learn more tips and tricks from the study team.
- TikTok: the.persevere.study (@the.persevere.study) | TikTok
- Instagram: Instagram @the.persevere.study
- Facebook: Facebook – The Persevere Study
About the Presenter
Sarah Mitchell Chen LCSW, APHSW-C is a Licensed Clinical Social Worker at Rush University Medical Center with more than 15 years of experience working as a clinician, program coordinator, and research team member with the PERSEVERE study. Sarah has spent her career providing care management in long-term care and ambulatory healthcare settings, where she works to address non-medical barriers to wellness and improve health outcomes for patients and care partners, focusing especially on individuals and families impacted by symptoms of various neurodegenerative disorders and forms of dementia. As a result of her work with the Advanced Interdisciplinary Movement Disorders Supportive Care Clinic at Rush, Sarah has completed advanced training and certification in palliative care. Sarah earned a master’s degree from the University of Chicago Crown Family School of Social Work, Policy, and Practice.
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