Privacy Policy

Version	1.2
Effective	October 2, 2023

Thank you for choosing to be a part of the Santa Fe Parkinson’s Disease Action Group (“we”, “us”, or “our”) community.

This privacy policy applies to the site hosted at https://santafepdaction.org.

We respect the privacy of our users. If you have any questions or concerns about our policy, or our practices with regards to your personal information, please contact us at .

This privacy policy applies to all information collected through our website, blog, web applications, and/or any related services (we refer to them collectively in this privacy policy as the “Site”). Please read this privacy policy carefully as it will help you make informed decisions about sharing your personal information with us.

Informed consent every step of the way

Ours is a consent-driven community. We will not share or sell your personal information with anybody and we will not send newsletters, announcements, or surveys to you unless you provide consent.

What information do we collect?

We obtain your personal information only from you.

We may collect the following information:

Personal information you disclose to us. The personal information we collect depends on the context of your interactions with us, the choices you make, and the services and features you elect to use.

Name and contact data. No personal information is required to browse the web site. We collect your first and last name, email address, phone numbers, and other similar contact data when you use other services.

Credentials. We collect passwords and similar security information used for authentication and account access to our online applications.

Automatically collected information. In addition to the information that you manually enter into our web forms, we also collect non-personal information that can, in no way, identify you personally. This non-personal, anonymous information includes log information such as the version of your web browser, your computer’s operating system, Internet address, computer or browser identifiers, language preference, referring site, the date and time of access, and mobile network information.

Usage information. We collect anonymized statistical information about your usage of our services. For example, we collect information about the number of registrants to our email lists. We use this information to improve our services.

Website and application analytics. We use the automatically collected information provided by the hosting environment. All data collected remains within the hosting environment where the site itself runs. The data itself is accessible only to those users authorized by the Steering Committee of the Santa Fe Parkinson’s Disease Action Group, and is managed under the terms of this Privacy Policy.

Cookies. You will be explicitly asked for permission to store cookies. In general, we use cookies to improve your interactions with the site, or to implement specific features.

If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.

If you visit our login page, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.

When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.

If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.

You may revoke your consent to use cookies on the website an any time.

If you choose to disallow cookies, any cookies will be cleared immediately and the site will not use cookies to track you for any future use. However some features of the site will not continue to work.

User Surveys: We may survey the subscribers to our mailing lists.  Results of the surveys will be used to improve our programs and services.

Participation in any survey is completely voluntary. You may choose whether or not to participate in a survey and therefore disclose information. Each survey will explain precisely what data is being collected and how the data will be used.

Comments. When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.

An anonymized string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: https://automattic.com/privacy/. After approval of your comment, your profile picture is visible to the public in the context of your comment.

How we use the information you choose to share

If you choose to provide us with personal information through email, phone, or our website information systems, we will do our best to use that information only to serve your needs as a customer.

All communications except those concerning issues with your account or changes in polices require your opt-in consent, generally via subscription to one or more mailing lists.

We will never sell or rent your personal information to anyone. Selling or renting your information is unacceptable to us.

However, we do share your information as necessary with specific third parties under certain circumstances as described below.

Email services. We use MailPoet to send out email newsletters and announcements. The subscription information that you provide (name and email address) will be transferred to MailPoet and subject to their policies. Whenever you receive a newsletter or announcement, you will be given the opportunity to unsubscribe.

Password reset. If you have an account on this Site and request a password reset, your IP address will be included in the reset email.

Interactions with other users. If you interact with other users of the Site, those users may see your name, profile photo, and descriptions of your activity, including sending invitations to other users, chatting with other users, liking posts, following blogs.

Online postings. If you post comments, contributions or other content to the Site, your posts may be viewed by all users and may be publicly distributed outside the site in perpetuity.

Comment filters. Visitor comments may be checked through an automated spam detection service.

hCaptcha. We use the hCaptcha security service (hereinafter “hCaptcha”) on our website. This service is provided by Intuition Machines, Inc., a Delaware US Corporation (“IMI”). hCaptcha is used to check whether user actions on our online service (such as submitting a login or contact form) meet our security requirements. To do this, hCaptcha analyzes the behavior of the website or mobile app visitor based on various characteristics. This analysis starts automatically as soon as the website or mobile app visitor enters a part of the website or app with hCaptcha enabled. For the analysis, hCaptcha evaluates various information (e.g. IP address, how long the visitor has been on the website or app, or mouse movements made by the user). The data collected during the analysis will be forwarded to IMI. hCaptcha analysis in the “invisible mode” may take place completely in the background. Website or app visitors are not advised that such an analysis is taking place if the user is not shown a challenge. Data processing is based on Art. 6(1)(b) of the GDPR: the processing of personal data is necessary for the performance of a contract to which the website visitor is party (for example, the website terms) or in order to take steps at the request of the website visitor prior to entering into a contract. Our online service (including our website, mobile apps, and any other apps or other forms of access offered by us) needs to ensure that it is interacting with a human, not a bot, and that activities performed by the user are not related to fraud or abuse. In addition, processing may also be based on Art. 6(1)(f) of the GDPR: our online service has a legitimate interest in protecting the service from abusive automated crawling, spam, and other forms of abuse that can harm our service or other users of our service. IMI acts as a “data processor” acting on behalf of its customers as defined under the GDPR, and a “service provider” for the purposes of the California Consumer Privacy Act (CCPA). For more information about hCaptcha’s privacy policy and terms of use, please visit the following links: https://www.hcaptcha.com/privacy and https://www.hcaptcha.com/terms.

How long do we keep your information?

We keep your information for as long as necessary to fulfill the purposes outlined in this privacy policy unless otherwise required by law (such as tax, accounting, or other legal requirements).

When we have no ongoing legitimate business need to process your personal information, we will either delete or anonymize it, or, if this is not possible (for example, because your personal information has been stored in backup archives), then we will securely store your personal information in a repository isolated from further processing until deletion is possible.

If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue.

For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.

How do we keep your information safe?

We take a number of important steps to protect your personal information.

• We treat your personal information as confidential.
• We tell our volunteers to take care in handling all information.
• We limit access to those who need it to perform their tasks.
• Our outside service providers must also protect it, and use it only to meet our business needs.
• We also take steps to protect our systems from unauthorized access.
• We comply with all laws that apply to us.

How do we handle information from minors?

We do not knowingly collect data from or market to children under 18 years of age. If we learn that personal information from users less than eighteen years of age has been collected, we will deactivate the account and take reasonable measures to promptly delete such data from our records.

If you become aware of any data we have collected from children under the age of 18, please contact us at  .

What are your privacy rights?

If you have an account on this site, are subscriber to one of our mailing lists, or have left comments:

• You can request an exported file of the personal data we hold about you, including any data you have provided to us.  
• You can request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.
• You can request once a year and free of charge the names and addresses of all third parties with which we shared personal information in the immediately preceding calendar year.

If you would like to make such a request, please submit your request via email to . If we have your phone number on file, we will confirm your request with you by phone.

If we are relying on your consent to process your personal information, you have the right to withdraw your consent at any time. Please note however that this will not affect the lawfulness of processing before its withdrawal.

If you’re a resident of the European economic area and you believe we are unlawfully processing your personal information, you also have the right to complain to your local data protection supervisory authority. You can find their contact details at http://ec.europa.eu/justive/data-protection/bodies/authorities/index_en.htm.

Disclaimer: External Sites

Our site may link to external sites.

We are not responsible for the content or privacy practices of the external sites. We strongly recommend that you read the privacy statements of any other site that collects personally identifiable information.

Legal Requirements

We will share your email with a government agency if required to do so by law. In addition, we will release documents, including e-mails, if required to do so by a congressional or judicial subpoena.

Privacy Policy Updates

We may update this privacy policy from time-to-time to stay compliant with relevant laws. The updated version is indicated by the effective date at the top of this page.

Whenever we make material changes to this privacy policy, we will notify you by prominently posting a notice of such changes and by directly sending you notification via the relevant email subscription lists.

Contact

Please don’t hesitate to contact us at  if you have any questions about our privacy policy or regarding other privacy-related matters relevant to our Site.