Advocacy

Last updated on September 8, 2023.

  • National Plan to End Parkinson’s Signed into Law
    by Bob

    On July 2, President Biden signed the National Plan to End Parkinson’s Act into law. Find out more from the Parkinson’s Foundation or the Michael J. Fox Foundation.

  • National Plan to End Parkinson’s
    by Bob

    On July 2, President Biden signed the National Plan to End Parkinson’s Act into law. The Act was passed by the Senate on on May 23, 2024.

    Ted Thompson, Senior Vice President, Public Policy of the MJFF was one of our four panelists at our February SFPDAG ZOOM session and he described the passage of this bill as being one of the MJFF 2024 priorities. Here is his synopsis:

    The National Plan to End Parkinson’s Act is legislation that will — for the first time in history — unite experts with a broad array of insights to diagnose, treat, prevent, and cure Parkinson’s disease. Now that the bill has been passed by both chambers of Congress, it heads to the president’s desk where it will be signed into law!

    This incredible win is due, in part, to years of dedicated advocacy by the MJFF community. Thousands of supporters signed our petition, sent letters to Capitol Hill, met with Congressional leaders, placed op-eds and more. 

    The National Plan to End Parkinson’s Act (H.R.2365/S.1064) is bipartisan, no cost legislation that will create an advisory council comprising members of federal agencies, people living with Parkinson’s, care partners, researchers, clinicians, and other experts.  With the recent Validation of a Parkinson’s biomarker , there is no better time for the federal government to join us in supporting research for a cure.

    Together, we raised our voices — and Congress listened. 

    Please take a minute to call your representatives and senators to thank them for supporting this bipartisan bill. 

    Michael J. Fox Foundation

    You can view the announcement on YouTube. The Parkinson’s Foundation announcement is here.

    This is a huge step forward! Thanks to everyone who reached out to our NM delegation. Both Sen. Heinrich and Rep. Leger Fernandez co-sponsored.

  • Support the National Plan to End Parkinson’s Act
    by Bob

    The National Plan to End Parkinson’s is now before Congress. One important action you can do is to contact our legislators and ask them to support the Act.

    The bill has been introduced in both the Senate and the House during the 118th Congress (2023-2024).

    New Mexico has a very accessible and receptive delegation in Congress. You may already know or be in touch with one or more of them.

    Let’s see if we can get every member of our delegation to be become a co-sponsor (Senate) or a supporter (House)! In the list below, a ✅ indicates a cosponsor. A indicates that the member has agreed to sign on, but is not yet listed in the Congressional Record.